Hearts and thoughts they fade . . .

. . . fade away. Or do they? Just finished visiting my mother-in-law in the home. She has been declining from blood supply related dementia (like alzheimer's) and she is to the point of refusing all food and water. The staff and hospice could not even get her to suck the water swabs they have on a stick to wet their lips and allow them to ingest just a little water. Before she moved into assisted living, she stayed with us for nearly 4 years. Watching her decline from a very articulate psychiatrist that loved jazz, wine and good food and conversation to someone suffering from that disease and that could not call names to mind nor find her purse, nor remember how to eat has been a bit tough. My wife is away on a trip, and it just so happens that it appears now is the time that the end is near. So I was there with her today.

Learning this song, and playing it late at night seemed to help me process things during that time.



But today, as I visited, she came from a stupor to wanting to try to get up, and wanting to go out and sit outside and enjoy the warmth and the breeze. She always has liked to be outside, as the numerous skin lesions from years of being out in the sun without sunscreen can attest.

Once we got her outside, she seemed to come further out of her stupor and obviously recognized me and smiled at me and tried to say thanks I think. We sat for a while, and I talked to her and she laughed at funny faces. She always has liked making funny faces. So maybe, though she cannot communicate anymore, hearts and thoughts reside within. She also vigorously sucked the water swabs and accepted a little water. I told her her daughter (my wife) was flying home early and would be here tomorrow.

As she was waking up, I strummed some on my guitalele I had brought to strum some chords for her and to keep myself calmed down. But it was not the above song that felt right, but this one. Might seem trite, but it is what felt right.



Not really sure why I felt like sharing this on a guitar forum. Take it for what it is. Not so much a mojo request as a journal entry and memory.
 
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Crazy. I was at my folks today celebrating my grandmother's 95th birthday. She has be suffering from dementia for the last 15 or so years. She rarely speaks now and has no idea who any of us are. My cousins 3 year old sat on the couch with her and she lit up and was talking. She was very quiet so we couldn't really hear her, but it was the first time I have seen her like that in years.
 
. . . fade away. Or do they? Just finished visiting my mother-in-law in the home. She has been declining from blood supply related dementia (like alzheimer's) and she is to the point of refusing all food and water. The staff and hospice could not even get her to suck the water swabs they have on a stick to wet their lips and allow them to ingest just a little water. Before she moved into assisted living, she stayed with us for nearly 4 years. Watching her decline from a very articulate psychiatrist that loved jazz, wine and good food and conversation to someone suffering from that disease and that could not call names to mind nor find her purse, nor remember how to eat has been a bit tough. My wife is away on a trip, and it just so happens that it appears now is the time that the end is near. So I was there with her today.

Learning this song, and playing it late at night seemed to help me process things.



But today, as I visited, she came from a stupor to wanting to try to get up, and wanting to go out and sit outside and enjoy the warmth and the breeze. She always has liked to be outside, as the numerous skin lesions from years of being out in the sun without sunscreen can attest.

Once we got her outside, she seemed to come further out of her stupor and obviously recognized me and smiled at me and tried to say thanks I think. We sat for a while, and I talked to her and she laughed at funny faces. She always has liked making funny faces. So maybe, though she cannot communicate anymore, hearts and thoughts reside within. She also vigorously sucked the water swabs and accepted a little water. I told her her daughter (my wife) was flying home early and would be here tomorrow.

As she was waking up, I strummed some on my guitalele I had brought to strum some chords for her and to keep myself calmed down. But it was not the above song that felt right, but this one. Might seem trite, but it is what felt right.



Not really sure why I felt like sharing this on a guitar forum. Take it for what it is. Not so much a mojo request as a journal entry and memory.


You're a good man, SVL, I have seen this with my mother-in-law (RIP), and the good, non-verbal moments definitely make you well up with tears.
 
Thanks guys. She was a high schooler in Arnhem during WWII and was forced from her home by the Germans and lived in Oosterbeek if I have that all straight. She is 90. Came to the State's in about '53 and raised a family, one child with birth defects that took that child's life, though it took a long, long time. She was a practicing psychiatrist for years, working with the indigent, and others in a small home based private practice. As I said, she enjoyed jazz music (many Dutch that were around for the war loved American jazz), and classical, good wine, good food, and touring around, traveling and being outside.

I was not with my own Dad in his final days, due to distance, and expecting to see him within about a week of when he died. In a way, being there for her seems to make up for it somehow.
 
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Excellent post. Very touching.

My mom's last few years were spent in an Alzheimers care facility in Orlando. As such, I very rarely got to see her since I was out here in California.

My older brother, who has done more for me than I can ever begin to describe, sent me a plane ticket and a ticket to a big festival concert in Orlando as a s surprise in November of 06. The concert was in the first week of December.

I flew out, hung out with my brother for a couple of days, went to the concert. ..

During the few days I was there, I got to spend a good bit of time with mom. She wasn't well, but hadn't been for many years. She had long since lost her ability to recognize us, or even to speak.

Seeing her that way was pretty unbearable, but every now and then, a little light would appear in her eyes and I would think maybe, just maybe, she knew it was me.

Less than 3 weeks later, she was gone.

I can't tell you how much it meant to me to have been able to see her that final time.
 
Alzheimers is the cruelest disease for the family to go through. Props to you for helping make her days better. Music and time outdoors can sooth and heal in many ways.

I remember how time sitting in a garden with my mom in her last days cheered her up. She loved flowers and nature. We planted a magnolia tree (her favorite) over her buried ashes.
 
Though they are vague, hospice believes it will be very soon. They said within 2 weeks on Friday or Saturday, I forget which. But I think once she started refusing even water for the most part, it will be sooner. Seems like I read it is generally between 5-7 days without water. And she sucked a little at the swab for me yesterday, but that was about it. My wife arrives back in from out of town today, and her brothers are on the way and should get her late today or tonight.

I believe based on what I was told that hospice will be getting a doctor's order to cease feeding and water, etc., in accordance with her papers. I am curious about that and will find out further. I think it is a piece of paper to protect the facility for not using stronger measures to nourish her.

I plan on heading down there in a bit to check on her before I pick up Gwen from the airport.

EDIT: spoke to hospice and as I was thinking, it is an order to go to comfort measures only. To not try to force food/water/moving, etc., in accordance with regulations, but rather in accordance with the patient's comfort.
 
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Wonderful to read, and my heart goes out to all involved.

And Hospice is an absolutely amazing organization with some of the kindest, most understanding, and patient people on the planet.
 
Tough times for all involved. I'm so sorry. Many lessons to be learned and perspectives to change at this time. You seem to be doing it right.

Best wishes for all involved.
 
Not really sure why I felt like sharing this on a guitar forum. Take it for what it is. Not so much a mojo request as a journal entry and memory.
Probably because you can relate to many of the people here.

Mojo SVL and it was a very touching post. It's tough to watch I know. The only solace I can take is that the person does not seem to know what is happening (at least in the case of my mother when she was dying of cancer). As sad as it is to say I honestly hope that this phase is shorter than longer, it's best for all concerned

My best wishes for your family
 
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